Surgery Date set

We had our consultation with the surgeon last week. He was a little apprehensive about the G-tube at first because Tanner's weight is in the 50th percentile, however after hearing our story and learning that Tanner has been formula dependent his whole life made him see the light. The bottom line is that Tanner will not drink the Elecare anymore and it will not take long before he falls off the growth chart. Tanner also gained 4 pounds in the month that he has had the NG Tube and he is doing so good. He has energy like I have not seen in a long time. G-Tube surgery and and endoscopy are scheduled for November 28th. He will also have an upper GI series, also known as a modified swallow study on November 2nd. He has never had a swallow study and I am a little nervous because he has to drink a berrium solution and I have no idea what is in it and how his body will react to it. I am also nervous about the swallow study because they will be giving him different thicknesses of the barrium and tanner has some sensory issues and it may be a real fight to get him to even put that in his mouth let alone swallow it.

I have some anxiety about the endoscopy for a few reasons. For one Tanner has been complaining about food getting stuck in his throat. This is a big red flag that he has more damage in his esophagus than before. Also Tanners GI is not available on the 28th to do the endoscopy and  I am not familiar with the GI that is going to do the procedure. I just don't like the idea of so many "cooks in the kitchen" so to speak.  I can not reschedule because Tanner really needs this surgery and endoscopy as soon as possible.

We also recently found out that the GI we love so much is moving to the east coast. I really do not like "Dr. Shopping" especially since once you see a Dr. at a practice they will not allow you to change to another in the same office. I think this is ridiculous. You should not be forced to stay with a Dr. you are not comfortable with. Our current GI has the same  views we did on quality of life and when we should change diet or add steroids. I hope he can refer us to someone with similar views.

We appriciate all your thoughts and prayers. Thank you for taking time to read this blog and stay up to date with what is going on with Tanner. It really does mean a lot to us.