Well it has been a month since Tanner's endoscopy/colonostopy and his Eosinophil count was higher than ever. We had a few options 1. go formula only for 3 months and hope for a clean scope. 2. get him in the Budesonide study. If he was in the study he would not change his diet at all. Well we went in a little over a week ago to get the slides sent off to Cincinnati to see if his counts were high enough to qualify. In order to be accepted he had to have 15 Eos in 2 parts of the esophagus. Unfortunately He had 45 in one and 3 in the other so he does not meet the criteria.
We also have been to see the allergist to get testing done which I also bogged about. He thinks it is drastic to take all of Tanner's food away. He thinks we should pick 4-5 foods that Tanner tested negative too on blood and skin test and go with those and formula for 3 months. If he scopes clean after 3 months we can do some food trials. If his scope is not clean then we will be forced to go with formula only.
Blue and I have weighed all of the options and think that the allergist is right. We need to try to keep some foods. If we have to go formula only after that then we can accept that, but we don't have to like it. So starting today Tanner can only have pork, rice, apples, broccoli, olives and Elecare (formula).
We sat Tanner down today to tell him. His response was "Mommy I need food to get bigger" He is just to smart. I tried to explain that he will still get food but only those 5. I also told him we would find some fun snacks to make with apple like fruit roll-up (homemade of course) He has already begged for sweet potato chips. The only thing that stopped him from having a breakdown was a can of olives and I had to let him open them. This is going to be tough!
Tanner is such a great kid. He is sweet and just takes it all as it comes. He has done very well with not having the same foods as everyone else. I know that we will get through this but it will be hard since he just lost what few foods he loved. Please keep us in your prayers we need all the help we can get.
Thank you to all of you who read this. I really have a hard time calling everyone and explaining all this. It is so emotional for me. I don't want my little boy to fell left out and we all know everything revolves around food especially with the holidays around the corner.
